Thursday, May 29, 2014

And Now I'm Going to Eat Pie

I'm here!  I know.  You've all been wondering where I am.  Where are the posts?  What is happening?!  I've been slacking on the writing I'm afraid.  But I am here...and there; everywhere!  The last couple of weeks have been BUSY!  That is a good thing for me since I was kind of in limbo for a while.  I felt a little lost and unmotivated.  I didn't feel like I had much going on and I was starting to panic.  Apparently I need a certain amount of stress in my life to function.  I had to remind myself that sometimes not having "something" going on, is a good thing.  It is life's little way of saying "Chill the eff out!  RELAX!"  It appears I don't know how to do that very well. 

Now I am back with a full plate (so to speak).  I have been putting in some extra time at work, taking care of the short people who live in my house, and preparing for the next few weeks  The sun has been out and I have been taking time out to get my fingers filthy in the garden, (don't look at my nasty nails) watching the neighborhood kids play, (or try to kill each other.  However you want to look at it) and relaxing with their parents.  I love B.S.ing with grown-ups while the plethora of kids play, cry and make us laugh.  It's been a good start to the spring/summer season.  Bring on the outside world!

The month brings on a bunch of things.  The kids are finishing up school and my daughter is turning 7.  In less than two weeks I will be hosting my own booth at a local Wellness Connection Expo.  I will be speaking, telling my story and talking to the public.  This whole thing has brought up some mixed emotions and thoughts.  I have contacted every single local eating disorder treatment provider I can find in the Western Washington area.  The response was swift and sweet.  NEDA sent me a whole box of information and flare to pass out.  Opal has given me a bunch of goodies.  Vibrant Health has given me info to share as well as The Center for Discovery.  I feel pretty confident that I have enough "stuff".  My fear is doing this alone.  I will be at my own booth talking to the public about a very personal topic.  A sometimes embarrassing topic.  I thought I might have a partner with this but now it looks like I am going solo.  My self-critical mind takes over.  Thoughts of inadequacy flood in.  "What are you doing?!  You are not a professional!  You don't have a degree in this!  You are not a healthcare provider.  What are people going to think?  You should not be doing this."  I fight back with a self-inflicted mind smack.  I should be doing this, and I can do it alone.  I have to remind myself that sometimes people aren't looking for a "professional"  sometimes people are needing to hear from someone who has been in it.  This is a perfect time to show myself what I am capable of and that I am enough just as I am.  I'm educated on the topic.  I can do this. 
 
On another note, I was selected to be a MentorCONNECT mentor.  It was quite a process!  I had to apply and then answer some tough questions.  I have to say I'm very proud to be chosen and I can't wait to get started.  This scares me a little too but I know I have the support of the program and help is always available.  I have been doing a little of this type of work on my own, now I am part of a group which feels pretty dang good.  I also decided at the last-minute to participate in the Seattle NEDA walk.  This year I am not quite as involved as I was previously.  I am taking a backseat and trying not to get too competitive about it, which is really difficult considering I'm the most competitive person I know.  I am am going to do what I can, but not overextend myself too much.  My own recovery, life, happiness and family come first.

Well that's an update.  I'm going to go eat a pie.

pie

Live on!

-Kristy

Tuesday, May 6, 2014

Just a Taste of Rehab- part 1

**Trigger warning If you are currently struggling with an eating disorder, the following post could trigger strong feelings.  If you choose to read on, please do so at your own discretion.**
At 7:00am we would wait with the other patients for the van to pick us up.  We were staying at an apartment complex about a mile from the treatment facility.  It was chilly that early in the morning in Denver.  Even during the summer.  We would try to find a spot in the sun.  We would make awkward small talk.  Some would smoke a cigarette.  We would talk about the previous day's drama or about the staff.  We'd all keep watch for the white van and try to guess who was picking us up that day.

This, was PHP

PHP stands for Partial Hospitalization Program.  Those of us in this program were out of critical medical care and participating in treatment  all day, every day.  Monday through Sunday.  It was mandatory we show up if we wanted to stay in the program.  If we wanted our insurance companies to continue paying for our treatment.  If we wanted to be released home to our families and friends.  Most people who were in the PHP came from the In Patient/Residential Program.  A place were they were monitored 24 hours a day.  Others were "Direct Admits" and were brought directly into the PHP.  This program allowed us to leave for the night, only to sleep in a strange place with people we didn't know, and were constantly changing.  But at lease there was some freedom and a reprieve from constant watching eyes.

When we arrived at the facility we were immediately separated into male and female groups and led to the bathrooms.  I would always feel a twinge of sympathy for the one or two guys that were thrown in with this group of women.  What must it be like to be a man with an eating disorder?  It's often considered a "woman's problem."  The men I met always handled the overbearing population of women so well and gracefully.  Form teens to  the elderly, all different races, religions and economic backgrounds, we were all in this together.

Some mornings we would have to take a breathalyzer test.  I had never had to use one before  "Keep blowing until it beeps."  We were then asked to pee into a cup.  Every morning.  The sink would often be running for those that had performance anxiety.  We stripped naked.  Put on a see-through mesh gown.  Chatted amongst ourselves, made jokes, tried to lighten the mood to comfort each other while we waited for a staff member to join us.  The staff would test our urine.  They were making sure we were not water-logging to up our weight, taking any drugs we were not prescribed, and checking our general health.  We would be weighed backwards on the cold digital scale so we could not see the dreaded number.  We could wear nothing.  No socks.  No jewelry other than the basic wedding ring or stud earrings.  We sat and waited for our blood pressure to be taken along with our pulse and temperature. On Mondays we would shuffle down to the lab.  We had to give some blood before breakfast.  I fainted the first time even though I was already laying down.  I would chat with the nurse and crack jokes from that point on to keep distracted from the needles and vials of blood.  A profile picture was taken on our first day for our files.  I looked gaunt, gray and resolved to my situation.  Broken.  I remember the purple striped shirt I wore in that picture.  My collar bones protruding.  My face sunken and miserable.

After vitals were taken we would each find our own spot in the facility to prepare for our day.  There were a couple of common rooms with TV's, couches, chairs.  We would meander, or chat, or isolate, or sleep while we waited for the breakfast call.  Our anxiety would grow with each passing minute.  We were dreading it.  Begging for it.  Afraid of it.  Starving.

The staff would announce our meal was served and we would trot like sullen lambs to the dining room of doom.  A place that brought up such fear, such anxiety, that it was palpable.  Our crafty name tags would be laid around the  circular tables like we were in kindergarten.  A staff member was assigned to each table along with 6 or 7 other patients.  We would stand at our named spots and recite a prayer of sorts.  A non-religious mantra about accepting things we cannot change.  I would hold my breath as I sat.  We set an intention for the meal we were about to have.  "My goal is to not make faces at my food."  "I am not going to clock-watch today."  We looked at the food that was prepared for us carefully by the kitchen staff.  Everything precise.  Everything exact.  Everything according to our specific meal plans devised by our respective dieticians in the previous meal planning session.  We could have nothing more...and nothing less.  Everything was calculated down to the amount of butter, syrup, ounces of milk, salt.  We looked at our plates examining, re-calculating to make sure nothing was slipped to us that wasn't' supposed to be there.  People knew down to the ounce how much they agreed to have.  Some of us would moan and grumble as we picked over our food.  Nothing could be changed.  Meal plans which we signed off on were often dug out and analyzed.  "No, see you did order your egg scrambled, not hard-boiled."  "You didn't specify you wanted melons excluded."  Often we would take a big breath and accept the reality of our plates  Sometimes a patient would lash out or desperately try to find a way to get around eating something in front of them.  No jackets, purses, bags or hooded sweatshirts were allowed.  Hands were to be above the table.  Occasionally a breakfast bar or muffin was able to be slipped up a sleeve or hidden in a pocket, but this was hard to spot.  We would glare with anger or jealousy at the whomever was able to get away with such a move.  Why did they get to sneak away their food while we had to eat ours?  We reverted back to children.  We had become experts at concealing food.  But the staff had become experts at watching and seeing.  Our plates were over-turned to make sure we didn't hide a morsel.  Little purple orchid blossoms were placed on each of our meals to...I don't know, bring a smile to our face?  Give us something other than a pile of calories to look at?  A time was written on the whiteboard in the room.  A time we could leave our seats.  Exactly half-an-hour to eat our food.  Many of us struggled with the clock.  We had to learn how to eat at appropriate speeds.  Not too fast, not too slow.  The digital clock would tick by.   As we choked down our food, we tried to play games with each other to pass the experience.  Name that celebrity or alphabet games.  Anything to distract us from our plates.  When someone was struggling we would leave them be or ask how we could support them.  Sometimes one or two people could set the mood for the whole table or the room.  Some would finish early while others would cut down to the wire and desperately shove the last bites in just the nick-of-time.  Those that did not finish had a choice:  Drink the calculated amount of calories of "Boost," a dietary supplement drink shake, or sign off as non-compliant.  We would have to do whichever we chose alone with a staff member after the others left the dining room.

Each day started like this.  We learned what to expect quickly.  The routine became both irritating and comforting at the same time.  This was just the beginning of the day.  The real work hadn't really even started.

Thursday, May 1, 2014

Alone on the Stage

I am considering giving my fist public talk on eating disorders and my road to recovery at a wellness conference in June.  I have thought of extending my advocacy work to public speaking for a while.  Perhaps talking with teens at schools.  Or joining a group that supports positive body image and speaking.  Perhaps a panel answering questions on the topic from a patient perspective, along with professional providers.  After all, I already blog, have written my story of hope for the National Eating Disorder Association as well as Hungry for Change UK.  I have been open and honest with family, friends and acquaintances.  I have helped others find treatment that works for them.  I have been an advocate for recovery in many ways for a couple of years.
stage

But this terrifies me.


It's not so much about getting up in front of people.  I was a competitive figure skater as a child and in theater in school.  I have no problem speaking in a crowd.  This is a different kind of fear.  My inner voice tells me I am a fraud.  I have contradicting thoughts.  One says I have never truly experienced an eating disorder.  This is not a new thought.  I have had this argument for years within my own head.  I have invalidated myself even while I was in treatment.  "I don't belong here." I would tell myself while in a locked down eating disorder facility.  I have said straight to my dietician's face, "I don't have an eating disorder."  Then there is this other side that tells me I am not well enough to help others.  Why on Earth should I give a speech on eating disorders when food is still such a battle for me.  How can I have both of these thoughts at the same freakin' time?!  It's all part of the disease of course.  Contradicting facts and lies.  It never makes any real sense.


With all of this doubt, why should I give a talk?  Why should I put my face and my body in front of a crowd to expose myself.  Writing is one thing.  I can hide behind a screen and a keyboard.  I don't have to look people in the eye or answer the tough questions face to face.  Even blogging and "coming out" has been incredibly scary.  I see people at the grocery store who know how messed I have been.  I get texts and e-mails from people asking for my help and opinions.  I have people coming up to me and saying, "I read your blog.  I get it.  I know what you're talking about."  It has been extremely eye-opening to see how wide-spread the problem with food is.  I feel honored that people trust me enough to talk with me.  And I really don't think I would change anything at this point.  I have come to terms with the embarrassment and the shame and turned it into helping others reach out.  Sometimes I just miss the anonymity of being quiet.


So I have a big decision that I pretty much need to make in the next day or so.  Do I get up in front of a crowd and tell my story?  What do I say?  Where do I begin?  How much do share?  What do I hold back?  What if I have to answer hard questions?  What if I don't have the answers?  On the other hand, what if one person, one mom or young girl or husband can relate?  What if I can get one person to seek treatment and live a healthier, happier, more free life?  What if I can get a family member or friend to understand?  Is that worth it to me?  I think it is.  I think my decision has been made.


Live on,


-Kristy